Before: Cooking – I love to cook but haven’t for ages because my legs hurt after five minutes. I could sit but chopping etc after 5 minutes my hands went all ‘spastic’. So cooking has ceased much to the disappointment of my wife :-)
1 week after: a bit longer, breakfast for me and my son doesn’t leave me as stuffed – but still spastic hands
Before: Exercise – No motivation to do any because it hurts and makes me feel stuffed for hours.
1 week after: walking to factory 43 once a day
Before: Showers – I still shower but it’s far from a hot shower – its mildly warm at best. Then because I’ve been standing for 8 minutes or so I am stuffed for the next hour or so.
1 week after: can have them warmer and no where near as stuffed when done
Before: Typing – Just typing this has made my hands start to go ‘spastic’
1 week after: still spastic hands
Before: Cold – I am only just sensing this the last few days, but me feet and hands are always cold.
1 week after: improved heaps within the first few hours
Before: Fatigue – Just a general feeling that walking outside to spray the weeds for example is a massive effort, so I don’t bother (i do but im stuffed for it)
1 week after: more motivated – walked from lunch at work to the bank, then another bank, then back to the car which i haven’t done for ages
Before: Heat Intolerance – Hot days, hot showers leave me stuffed.
1 week after: will know more in summer – but i can have warmer showers
Before: Bladder – It takes freaking 5 minutes to do a wee, and I have to sit down because standing up for 5 minutes leaves me stuffed.
1 week after: improved heaps – just go when i have to go – still sitting – but bladder control/function now very good
Before: Leg Pain – That tree trunk feeling when I do just a bit too much – throbbing in pain – not pain like i need to take drugs, but need to sit down and get off them
1 week after: nup, thats gone now
Before: Neck Pain – Again, im only just realizing this – but my neck is sore – I’ve just ignored it (like the cold hands and feet)
1 week after: gone – but a different pain now, feels like jugular veins are sore from surgery, thats all
Before: Foot Drop – My right foot just drops – i cant lift it at all which results in walking badly and having to wear the AFO
1 week after: still drops
Before: Balance – I can’t stand with my feet together and eyes closed (or open actually) – When moving through a crowded place with people sitting I have to walk very carefully and slowly so I don’t fall on them :-)
1 week after: improved but not great